AWESOME!

I’ve been doing a lot of reading lately.  My struggle is I don’t have much of an attention span as a result of my recovery with GBS, so I have a hard time staying focused.  I have several books that I’ve started, bookmarked, and not finished.  Then, I got the perfect book.  It came as a gift from a close friend who herself went through her own medical battle.  The card inside the gift box read:

“Here is my copy of the Book of Awesome.  It helped me look for and learn to appreciate small and simple things.  I hope it makes you smile.  Emily”  This book got Emily through a challenging time in her life, and I know it will do the same for me.  Thanks Em! Continue reading

The Sun’ll Come Out Tomorrow.

The sun’ll come out Tomorrow.  Bet your bottom dollar that tomorrow there’ll be sun.

There has been a lot of disappointment and sadness in the news lately.  Not much sunshine, mostly dark clouds.  It’s been rather hard to shake off the gloom.  The death of a Philly legend, Joe Frazier.  The lingering NBA Lockout.  The demise of Andy Reid.  The horror of Jerry Sandusky.  The shocking breakup of Kim Kardashian and Kris Humphries. Continue reading

I Will Survive!

I woke up Monday Morning, and the sun was shining brightly through my windows.  I was trying to figure out what I could do today to be productive.  No therapy today, so my energy bank was full, and needed something to do.  So, I decided to go for a quick drive.  Yes, that’s right!  I tasted a little slice of freedom this week!   Continue reading

Big George.

I remember the day I met them- Tuesday, February 2, 1982.

They had just moved in two doors up the road, into our neighborhood.  It was announced the week before that a new girl was arriving in our class.  So I had a feeling that the new girl was also moving in up the street.  That assumption was confirmed when my mother encouraged me to go up to their house and introduce myself.  “She’s the new girl and you should make her feel welcome,” she reasoned with me.  “And besides, it’s hard to be starting a new school halfway through the year.”      Continue reading

A Birthday Tribute to Pop.

I had a dream last night.

I was down the shore in North Wildwood.  Bathing Suit was on, Shades on my head, flip flops in hand.  My bag was filled with the usual necessities– sunscreen, baseball hat, book and an apple.  I came bounding down the main staircase and turned the corner to head into the kitchen.  Needed a bottle of water before I made the long walk to the ocean.  As I got to the landing of the staircase, I turned past the yellow rocking chair, and saw Pop.  He was sitting in his favorite chair, still in his pajamas, newspaper in front of him, reading glasses on, freshly brewed coffee in hand.     Continue reading

The Greenest Grass

On Tuesday, I went out to lunch with friends from work. They organized it to get me out of the house and see for themselves that I really was getting better. So, we headed to a neighborhood staple- Phil’s Tavern  in Blue Bell.  Dimly lit, extensive menu, and filled with locals. Continue reading

Bust a Move.

It’s been a tough week.  I find it harder to get up each day because of how impossible the past few days have been.  Believe me, I get up, but it’s with much more trepidation and less excitement than I’ve felt in a while.  I feel I owe it to you to be as honest as possible as I share this journey with you.  I don’t want to sugarcoat my experiences.  Yes, I try to see the best in every day, and I know that comes through in my writing.  However, I’m human, and there are days that just suck. Continue reading

Spes Messis in Semine.

One of the keys to recovering from GBS is taking time to rest.  Working hard in therapy is critical, but downtime is just as important.  Even if your mind is ready to go, you need to force yourself to be still.  A person needs time to sleep, recuperate and rejuvenate the fatigued body, much more frequently than normal.  Everything needs to be abbreviated- quick visit to the supermarket, a Mini Pedi instead of a full one, shorter talks on the phone.  Normal tasks take a toll much more quickly, and your body doesn’t rebound the way it used to.  I’ve been told to “give it a full year” to fully recover. Continue reading

Stand.

I got up this morning, and looked around my room wondering what I could do to be productive.  I did a full body check before I moved.  Arms moving?  Check.  Are my toes wiggling?  Check.  Could I sit up unassisted?  Check.  Bed Head?  Check.  Time to plan my day.  I have to do that now.  I have an “energy bank” and there is no overdraft protection, so I need to only do what is absolutely necessary each day.

As I pondered my first move, I sat up, put my glasses on, and started to stretch.  My eyes came into focus on something sitting next to my bed.  My Cowboy Hat.  It’s a hat that I’ve had for a few years now.  Reminded me of a birthday party a few years back where I had a Cowboy theme- people drank out of Mason Jars, guests came in Western attire, and the bartenders named a drink after me- Suzy’s Gunslinger (Jack, Tuaca, Frangelica and sprite- YUM).  I have fond memories in that hat.  This hat has come on vacation with me.  It has been on the beach with me.  It’s been on the dock at Heart Lake with me.  I’m a hat person.  Hats are stylish.  Big fan of Hats. Continue reading

Right Now!


Original Email Date- September 29, 2011

I find music inspirational.  Music can calm you after a long day. It can pump you up when you’ve got the perfect “arrival” song to a destination.  It can get you excited when you’re getting ready to go out with friends.  It can remind you of a loved one lost, or a new love gained.  Continue reading